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4-28-2012 Me and my cool Fanny Pack |
This is to help keep me focused on getting and staying in shape. Due to the effects of my Cerebral Palsy, age, weight, etc. I continue to have more and more back and leg pains. At this rate, I will be in a wheel chair within a couple of years. This blog is help me record what therapies, exercises, diets etc can keep me away from a wheel chair as long as possible.
Sunday, April 29, 2012
Starting again
Friday, April 27, 2012
An update on my leg. They finally figured out that it was a Strep infection in my leg and not a Staph infection. So they released me from the hospital on Monday but they have left my Picc line in and given me a IVs of Penicillin and a portable pump that I keep in a fanny pack and have to wear basically all of the time for the next 10 days. (It's a good thing that fanny packs are really stylish, huh.) I went and saw a disease specialist yesterday in Salt Lake and she had me describe what happened. When I was done, she said, that's a classic case of Cellulitis caused by Strep. She explained that Strep will give you flu like symptoms and spread rapidly whereas Staph stays more in one general spot and create boils. That was very interesting to learn but I wish my doctors would have known this so that they could have treated me with the right antibiotics 2 weeks ago. She also said, "I bet you have dry feet that with some cracks in the toes don't you". We looked and I do and she said that's where I picked up the infection. It's all still so bizarre how quickly it happened. It's basically a fluke that I got it and not very common. Lucky me.
The swelling in my leg has gone down a lot. It's still a little swollen and red but I the pain is considerably less. One of the things that I said that it felt like was the worst sunburn I've ever had. Well, it's starting to peel like the worst sunburn ever. She told me that I can start to go back to work again and to the gym but to try to keep the leg elevated whenever possible. That's kind of tough to do at work or at the gym. I asked her if I disconnect the IV drip while I was at the gym and she said no. I asked her if I should just do the bikes and she said she wants me to do both aerobic mixed with anaerobic exercises to get the muscles going again and blood pumping again because I've been basically laying around for the past two weeks. She also said to make sure to stretch. Basically, what she was explaining to me was that she wants me to do Crossfit. I just can't get away from it can I.
I guess it begins again. This time I'll be doing some of the basic Crossfit routines with light weight and that darn bike again with an IV hanging out of my arm. She just said to be careful that I don't get the line snagged. Holy crap, that would hurt. So, I've seen some pregnant ladies still going and thought that was crazy but great. So I will now get to join the crazies again. So, if you see someone in the gym that looks like they just escaped from a hospital, the doctor actually told me to do it. I wish I would have kept a hospital gown.
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Starting to get back to normal size |
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My cool portable IV pump |
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Katie with her sling and me with my portable IV bag. We make an awesome couple |
Monday, April 23, 2012
The following night, I was so tired, I thought I would sleep very well. I tried to sleep but I was so tired I think I was a little on the delirious side. They left the fluorescent lights on in my room. All of them had burnt out except one bulb and I was so tired but I started thinking about horror shows in the hospital with the one light bulb and the psycho surgeon and then I was afraid to go to sleep. I finally, quit thinking about those horror movies and was able to fall a sleep. Then around midnight, my door opened and there was an old man in a hospital gown looking at me and he had BLOOD on his gown. This sounds like I'm making this up but it seriously happened. After he stared at me he closed my door and left. I definitely was not falling back a sleep after that. Maybe I was just delirious and was letting my mind wander but I didn't know what to do. So I looked over at the door to make sure everything was fine, and there was blood on the freakin floor by my door! What kind of psycho hospital did I check myself into? I was waiting for a clown to pop out of the closet at any moment. Well a couple of minutes later a nurse looked in and apologized because the man next door to me was a little delusional and wasn't sure where he was at and was looking for a restroom even though he had a catheter in him. A janitor then opened my door and apologized and said he just needed to clean up the blood on my floor. I told him he might want to check my bed because I was pretty sure I had just messed my pants. He laughed and left. I could hear the old man and the nurses trying to get him back into bed for quite a while after that. I finally had to turn on the tv and sleep with the sound on just so that it would drown out what was going on in the hallway. Needless to say, I'm hoping to get some good rest tonight.
The infection on my leg has gone down a little and it's no longer purple but it's still painful as heck. I have to keep it elevated as much as possible for the next week so I probably won't be playing any racquetball this week. But I am home, so that's a step in the right direction.
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The 1 working light in my room. |
Sunday, April 22, 2012
Hospital
Thursday, April 19, 2012
So it's now been a week since my "Get in Shape" plan took a whacky turn. Currently, I'm in my " Keep my Leg and my Foot" plan that I wasn't really planning on being a part of. It's still hard to explain how it feels. When I'm laying down with my leg propped up, it feels like I have a very bad sunburn. I can write words on my leg with my finger. When I do stand and all of the blood goes down, I feel like it's crushing my shin, and I'm not sure why. It makes showers very painful. I also have to wrap my arm in cling wrap and tape it so the bandage doesn't get wet.
It's funny when people come by to visit because they aren't used to having a 7 year old non verbal autistic kid in the house. The best have been when we're in the basement and you can see Adams legs come over the railing and poke down to where you can see them and he'll pull himself back up again and his legs will disappear. Most visitors will gasp and try to stop him from hurting himself whereas we're all used to it and have given up trying to stop him because we might actually make him fall. Yesterday the bishop was over checking on me and Adam went upstairs and got some grapes from the fridge. I guess he decided that he didn't want them so he started throwing them over the ledge. They kept coming until Katie ran up and stopped him. Once again, we're used to strange things happening but I don't think he was expecting it. As the bishop left Adam pulled down one of our blinds. I'm wondering if we've scared him away. Other than that, my leg is still just as swollen and it's going to be a long time before I think I'm going back to work. Still very bizarre as to how this is all happening.
Does one leg look redder than the other?
Wednesday, April 18, 2012
4-18-2012
I went to the Dr for my check up and my leg and foot were extremely swollen still. So the dr ordered another 5 days of antibiotic IVs. The only problem is that my current IV line wasn't meant for more than 4 or 5 days so they had to remove it and install a PICC line into my arm. Basically what that does is runs a small tube through a vein in your arm all the way to your heart. Although it was not horrible, I'd prefer not to do that again. I may have mentioned this is a very frustrating infection because I don't feel sick and want to be elsewhere but I can't leave and I'm extremely bored. I have a follow up with the Dr on Monday and I'll get an idea when I'll be done with this nasty bacteria.
Tuesday, April 17, 2012
4-17-12
Today was my 4th IV of antibiotics. and I don't really see any improvement. The swelling is so bad in my lower leg that pictures of it really do look like a pigs leg. I get to go in tomorrow and have the doctor take a look and decide if I still need the IV's. I'm going to say 99% chance, yes. So I don't know when I'll be able to get back to normal life again.
It's not all bad though, I have learned some great lessons though. For instance, today on The Fresh Prince of Bel Air, that guy that plays Urkel, from Family Matters, was a celebrity guest star. He played Ashley's boyfriend. In this episode he was leaving for college and was trying to talk her into losing her virginity to him. Will found out about it and tried to talk her out of it but then finally realized that Ashley was no longer a little girl that needed his protection. She was grown up and whatever decision she made, would be the right one. Well luckily, she made the right choice and didn't lose her virginity and I'm guessing it's because she realized that she was dating Urkel. I'm glad she realized that before it was too late.
Other than that, I keep trying to get up and move around a little but every time I do, all of the blood rushes down to my already gargantuan leg and feels like it's touching every nerve in my lower leg and crushing bones along with it. It's very bizarre to be where I'm at in less than a week, but it's looking like it's going to be that way for a while. When I do sit, it's often in the Lazy Boy chair which is also Adam's favorite chair. He doesn't mind that I'm there because he sits wherever he wants whether you're there or not. So he'll often plop himself right on my leg. But I playing around with him so I guess it's a "Good Pain".
Somehow hoping all of the swelling goes down before the Dr's appointment tomorrow and I can go to work. Not counting on it though.
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Old man Scot, with his IV, watching his daily "Stories" |